‘Lay’ roles on research ethics committees : North American vs. New Zealand experiences
Loading...
Supplementary material
Other Title
Authors
Gremillion, Helen
Tolich, Martin
Bathurst, Ralph
Tolich, Martin
Bathurst, Ralph
Author ORCID Profiles (clickable)
Degree
Grantor
Date
2014
Supervisors
Type
Conference Contribution - Oral Presentation
Ngā Upoko Tukutuku (Māori subject headings)
Keyword
research ethics committees
lay member experiences
lay persons
lay roles
Health and Disability Ethics Committees [HDECs]
New Zealand
North America
New Zealand. Committee of Inquiry into Allegations concerning the Treatment of Cervical Cancer at National Women's Hospital and into other related matters.
Cartwright Inquiry 1987-1988 (N.Z.)
lay member experiences
lay persons
lay roles
Health and Disability Ethics Committees [HDECs]
New Zealand
North America
New Zealand. Committee of Inquiry into Allegations concerning the Treatment of Cervical Cancer at National Women's Hospital and into other related matters.
Cartwright Inquiry 1987-1988 (N.Z.)
ANZSRC Field of Research Code (2020)
Citation
Gremillion, H., Tolich, M., and Bathurst, R. (2014). ‘Lay’ roles on research ethics committees : North American vs. New Zealand experiences. Paper presented at Contemporary Ethnography Across the Disciplines conference, University of Waikato, Hamilton, 26-28 November.
Abstract
Unique situation in NZ: in the wake of the 1988 Cartwright Inquiry (extreme abuse of medical power in research), 50% of committee composition is lay.
Keep in check researcher and institutional power
Also, power to the “ordinary New Zealander” (layperson)
This research project: experiences of lay members (so, internal to committee process)
Across five ethics committees in NZ, lay members are empowered, fully valued members
In sharp contrast to the North American experience: limited grammarian roles and often alienated, if not intimidated in cttee
Yet, ambiguity of lay role, particularly in tertiary committees: who is a ‘lay’ person? (on Health and Disability Ethics Committees [HDECs], clearer: ‘non-medical’). What or whom do they represent in tertiary contexts?
Publisher
Permanent link
Link to ePress publication
DOI
Copyright holder
Copyright notice
All rights reserved