An autoethnographic study of the experience of a mother/caregiver managing and supporting a child with an Antegrade Continence Enema (ACE) up to the point of transitioning from the ACE
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Authors
Bleeker, Sheree Ann
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Degree
Master of Applied Health Sciences
Grantor
Southern Institute of Technology
Date
2023
Supervisors
Reddy
Duncan, Wayne
Duncan, Wayne
Type
Masters Dissertation
Ngā Upoko Tukutuku (Māori subject headings)
Keyword
Antegrade Continence Enema
Constipation
Autoethnography
Self-care
Constipation
Autoethnography
Self-care
ANZSRC Field of Research Code (2020)
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Abstract
Purpose Analysis of the caregiver experience supporting a child with an Antegrade Continence Enema (ACE) up to the point of transitioning from the ACE
Method Analytic autoethnography using personal narratives from self-journaling to explore the researcher’s experience. Thematic analysis is used to establish themes following a general inductive approach.
Results Three overarching objectives consisting of the psycho-emotional experience of the caregiver, conflict of roles as mother and nurse, and level of emotional and physical support are presented with corresponding themes that emerged from the data.
Conclusion There is scant objective literature regarding the management and weaning of an ACE procedure in adolescents. The experience of this caregiver provides insight to the culture of living with an ACE and the importance of promoting early self-care habits and the development of autonomy.
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CC BY-NC Attribution-NonCommercial 4.0 International