A longitudinal hermeneutic enquiry into the lived experiences of the wider family of a stroke survivor, at two years post stroke

Abstract

AIM: To explore the lived-experience of two family members of a stroke survivor.

BACKGROUND: The diverse consequences of a stroke upon the stroke survivor have been established in literature. The effect on the wider family members however has had limited investigation, especially over the two year period post-stroke. The widespread consequences of a stroke are important because they may negatively affect both the caregiver and the wider family. This study explores the lived-experience of two family members of a stroke survivor, over the first two years post-stroke.

DESIGN: A qualitative exploratory study using hermeneutic phenomenology.

METHODS: Purposive sampling recruited a family with two participants. Data were collected at six weeks, 12 months, 18 months and 2 years post-stroke through face-to-face, open interviews.

RESULTS: The lived experience of both participants varied considerably in regards to the effect of the stroke and day to day life. A theme of ‘Hostage to Duty’ was strongly identified with the wife of the stroke survivor, whereas the theme 'Back on Track’ was identified with the daughter.

CONCLUSIONS: The lived experience of the family of a stroke survivor is unique for each individual and varies considerably. The findings of this study highlight the difference in each participant’s experience over the two year period, from stroke onset. The spouse of the stroke survivor experienced significant caregiver burden over the two year period. The impact on the daughter however, was considerably less burdensome.