‘Lay’ roles on research ethics committees : North American vs. New Zealand experiences
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Authors
Gremillion, Helen
Tolich, Martin
Bathurst, Ralph
Tolich, Martin
Bathurst, Ralph
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Date
2014
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Conference Contribution - Oral Presentation
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Keyword
research ethics committees
lay member experiences
lay persons
lay roles
Health and Disability Ethics Committees [HDECs]
New Zealand
North America
New Zealand. Committee of Inquiry into Allegations concerning the Treatment of Cervical Cancer at National Women's Hospital and into other related matters.
Cartwright Inquiry 1987-1988 (N.Z.)
lay member experiences
lay persons
lay roles
Health and Disability Ethics Committees [HDECs]
New Zealand
North America
New Zealand. Committee of Inquiry into Allegations concerning the Treatment of Cervical Cancer at National Women's Hospital and into other related matters.
Cartwright Inquiry 1987-1988 (N.Z.)
ANZSRC Field of Research Code (2020)
Citation
Gremillion, H., Tolich, M., and Bathurst, R. (2014). ‘Lay’ roles on research ethics committees : North American vs. New Zealand experiences. Paper presented at Contemporary Ethnography Across the Disciplines conference, University of Waikato, Hamilton, 26-28 November.
Abstract
Unique situation in NZ: in the wake of the 1988 Cartwright Inquiry (extreme abuse of medical power in research), 50% of committee composition is lay.
Keep in check researcher and institutional power
Also, power to the “ordinary New Zealander” (layperson)
This research project: experiences of lay members (so, internal to committee process)
Across five ethics committees in NZ, lay members are empowered, fully valued members
In sharp contrast to the North American experience: limited grammarian roles and often alienated, if not intimidated in cttee
Yet, ambiguity of lay role, particularly in tertiary committees: who is a ‘lay’ person? (on Health and Disability Ethics Committees [HDECs], clearer: ‘non-medical’). What or whom do they represent in tertiary contexts?
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